First, Andrew did very well on his swallow study today. He handled the whole thing really well which is saying alot. Even a year ago he would have been screaming bloody murder. He has been passed for eating and drinking orally. The issues he has are all oral motor, his tongue just isn't cooperative.
We also had an Orthopedics appointment last week and his hips look great. Dr. Dietz said the left hip is solid and he is not worried about it ever becoming dislocated again. The right hip is pretty close, he's hoping the next time we go for x-rays it will be at 100%. This is awesome because I really have no desire to do the hip surgery thing again (ever). His hamstrings do continue to get tight. But Dr. D is not anxious to do any kind of surgery on them yet. Andrew is only 8 1/2 and doing the surgery too soon would mean doing it again later. We want to put it off until Andrew hits puberty.
We also saw Dr. Bishop for GI (he ordered the swallow study). He discussed with me the possibility of doing a fundo-nissen because Andrew still has some issues with reflux (GERD). I basically said "no". Andrew is not having any respitory issues that would make us think he is aspirating, so at this point I think it would be an unnecessary and yucky surgery. Dr. B agreed so we're done with that conversation now. He did suggest we go back to overnight feeds though because Andrew's issues seem to be more volume issues. His tummy just can't hold it all in.
We see Neuro in June, and then I can breathe. Oh wait- eye is in there somewhere too. Guess I better check on that.
Now on to Aaron....
He's just been doing alot of projects lately that I wanted to share. He and I went with his scout pack down to the Coralville Reservior on Saturday for a conservation project. We joined with more Scouts, the DNR, Corp of Engineers, and Americorps clearing away invasive species of trees and shrubs from Woodpecker Trail. It was a great time. The weather held up until about 3:30 when the rain started and it just got plain cold. So we were cold, wet and cold. The boys had a lot of fun though.
This is the Webelos Den from Pack 37.
The next project was changing a headlight in my minivan. I had a headlight out so it seemed like a prime opportunity for Aaron to work on one of his required achievements for Scouts.



1 comment:
Looks like you guys are BUSY!! Some fun...some not so fun:)
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